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| Skate Across America (157 Posts)
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Skate Across America for Lowe Syndrome |
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how can i sign up
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On 5/13/2005
blake
wrote in from
United States
(216.184.nnn.nnn)
how can a buddy of mine and me sign up to skate with you?? we can pull our weight for sure
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when and how
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On 12/26/2004
blake
wrote in from
United States
(69.167.nnn.nnn)
when and how could I sign up to join on the skate if possible?? blaketroop@hotmail.com
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Yes. Again.
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On 12/25/2004
Nick
wrote in from
United States
(67.169.nnn.nnn)
Yes. It will happen again. We've been working on logistics for awhile.
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again?
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On 12/25/2004
blake troop
wrote in from
United States
(69.167.nnn.nnn)
is this going to happen again?? plz email me back blaketroop@hotmail.com
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On 4/7/2004
Nick
wrote in from
(209.179.nnn.nnn)
Josh Maready's article in the March '04 issue of Thrasher has made it to the web:
http://www.findarticles.com/cf_dls/m0JSE/278/112984513/p1/article.jhtml
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On 3/26/2004
Nick
wrote in from
(66.87.nnn.nnn)
I just received an email today from a friend in Thailand who says that the National Geographic Special on SAA 2003 is running several times a week on the A1 channel there.
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On 3/5/2004
Jack
wrote in from
(207.114.nnn.nnn)
Hello,
First of all I would like to thank you for your project regarding Lowe Syndrome.
My name is Jack Smith, I am the father of Jack Marshall Smith, who passed away on May 6th, 2003 from complications due to Lowe Syndrome. I will gladly answer your questions over the next few days. have you been in contact with the Lowe Syndrome Association?
Thanks again for your concern.
Best Regards,
Jack Smith
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On 3/4/2004 WesE
wrote in from
(208.59.nnn.nnn)
I think it’s pretty cool that people are finding this forum via internet searches of Lowe Syndrome. Jack’s vision of the disease getting more attention due to the SAA tour is solidifying.
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On 3/4/2004
student
wrote in from
(24.7.nnn.nnn)
i am truly sorry to hear that people would use a site that is as a wonderful tool as this to ridicule/spite/hurt others. I assure you and any other readers that that is not my intention at all and f.y.i. if anyone chooses to disclose any information to me, i will not disclose your name/email/anything else you would prefer that i didn't, although I have to list this website as my source in my project. :)
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On 3/4/2004
hugh r
wrote in from
(69.166.nnn.nnn)
Fully understood and agreed with on that... I just requested a little more info because of the mean-spirited direction that occasional posts can take around here.
There is a gentleman who posts here who has a lot of personal experience with Lowe Syndrome... hopefully he'll be willing/able to provide you with all the info that your looking for... good luck on your research... HR
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On 3/4/2004
student
wrote in from
(24.7.nnn.nnn)
hugh r,
thank you for responding, i appreciate it.
my email adress is Disney_Luver@comcast.net and, no offense meant, i do not wish to reveal the location of my school on the internet for obvious safety reasons.
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On 3/4/2004 hugh r
wrote in from
(69.166.nnn.nnn)
How about an email address and your name "student"... also, where are you attending school?? HR
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On 3/4/2004 a student
wrote in from
(24.7.nnn.nnn)
To Those Whom it May Concern:
I am a high school student taking a honors biology course. I have been assigned a project to research a genetic disorder. The syndrome I was assigned was Lowe Syndrome. I have created a brochure explaining things such as the symptoms, mode of inheritance, description, treatment, and detection of Lowe Syndrome. These brochures will be used to further people’s knowledge of genetic diseases and the people who live with them. Since my teacher wants us, not only, to understand what the genetic disease is, but also to understand how the people afflicted with this disease and those around them live, she also assigned an interview and a reflection paper along with the brochure. I humbly ask you, as a student in need, to take a few moments of your time and answer however many of the following questions that apply to you or you are comfortable answering. I understand that this is a sensitive issue and i assure you I have tried my best not to offend anyone with these questions. I can only express to you my immeasurable thanks and the guarantee that I will try my best to further the knowledge of this genetic disease.
thank you once again for your time and effort
Interview Questions:
To parents of children with Lowe Syndrome:
1- Did this affect your planning for your child’s future in any way?
2- What was/is the hardest symptom of Lowe Syndrome you/your child has to deal with?
3- When your child was diagnosed
with Lowe Syndrome, did you look for as much information as possible on the subject or just accept the information doctors/geneticists told you?
4- If you answered yes to the first part of the former question, did you use any web sites or support groups you would recommend to other parents whose children are diagnosed with Lowe Syndrome?
5- Did having a child with Lowe Syndrome affect any specific aspects of your life other than the brining up of your child? If so, what aspects?
To those affected with Lowe Syndrome:
1- Is/was it hard for you to accept that you are different than other children/adults?
2- What do you hope will come out of the researching of Lowe Syndrome?
3- Did you think a cure will ever be found?
4- What is your opinion on the subject of genetic therapy, cloning and other aspects of genetic therapy, experimentation, or cloning?
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On 3/3/2004 John
wrote in from
(139.177.nnn.nnn)
Thanks for the info! Can someone from the SAA team use this forum to keep us informed when Nat. Geo. airs this program in the U.S. Thanks!
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On 2/26/2004
Nick
wrote in from
(66.87.nnn.nnn)
The footage has been edited. It will air first in Europe and Asia sometime soon.
Jack is planning a premiere party after the first airings overseas.
I've never seen a minute of the footage, so it'll be completely new for Josh and I.
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On 2/26/2004 John
wrote in from
(139.177.nnn.nnn)
Does anyone know if National Geograhic ever aired the video footage of the SAA. If not,when are they planning to show it? Thanks.
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On 10/6/2003
Jack
wrote in from
(207.114.nnn.nnn)
Hello Everyone,
If you made a mileage pledge, the distance we skated was 2,774 miles. If you could please figure out your total contribution and pay it via Paypal or by check it would be greatly appreciated. Payment details are on the Contest Calendar page.
Thanks again for all your support!
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On 9/1/2003
Jack and the SAA Team
wrote in from
(63.93.nnn.nnn)
Hello all,
We want to thank everyone who supported our trip; sponsors, families, friends and individual pledge makers.
Sasha, thanks for your generous contribution.
We are currently going through 25 hours of video footage, after we log everything it the tapes will be sent to National Geographic for the editing process.
We will also be auctioning off most of our gear with in the next couple of weeks on EBAY.
I would like to ask all of you to make one last shot at helping us raise even more research funds, please send the link below to everyone on your email list.
http://www.asphaltplayground.com/lowe.html
Thanks,
Jack and the SAA Team
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On 8/26/2003
Lansing
wrote in from
(24.147.nnn.nnn)
I add my congrats to the team!
Last week I flew from Boston to Phoenix sitting next to a Canadian guy who had *just* completed a trans-continental trip on his bike the day before. When I told him what you guys were doing, he was in total awe. Having just done it on a mountainbike, he simply couldn't believe that it could be done on a skateboard in nearly the same amount of time. He estimated it would take 2 months. When I told him it took you guys less than 4 weeks, he shook his head in disbelief.
Kudos again!
P.S. Disappointed that I didn't see ANY media coverage of it anywhere. Lame.
Lansing
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On 8/26/2003
Nick
wrote in from
(66.87.nnn.nnn)
I just got back home from a 3-day drive BACK across the country from Virginia. Dropped Josh off at the Greyhound bus station on Saturday morning for the 4-hour bus ride to Wilmington, NC. The rest of us had a 3000 mile drive ahead of us in the now not-so-mighty white Windstar, which is now filthy dirty and stinky. Powered through for 34 hours to Denver, spent the night at GF's abode in Golden (thanks, Gary and family!), then on to California. We dropped Scott off around 3AM, then crashed at Jack's for the night.
Super-duper extra-special thanks to all the sponsors and supporters that helped us out on the trip. We could not have done it without you.
Keep pestering the media to let them know what we have done. Imagine the donations that will come pouring in if this story goes national. Imagine a cure for Lowe Syndrome. All it takes it time, money, effort, and imagination. If you can supply any of those things, then our efforts have been successful.
Skateboarding is the medium, but the message is Lowe Syndrome.
Skate for fun only!
- Nick
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On 8/25/2003 hc
wrote in from
(130.65.nnn.nnn)
congrats to all you guys,
simply amazing!
I gotta see some videos of this.
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On 8/25/2003
Richy & Maria C.
wrote in from
(198.81.nnn.nnn)
Just wanted to congratulate Jack and the SAA Team for completing their awesome journey! I'm sure all that hard work will go a long way in furthering the efforts for Lowe Syndrome. See you all at the Worlds!
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On 8/25/2003 Skategeez
wrote in from
(208.242.nnn.nnn)
Thomas, thanks for the update and information. I do mostly distance boarding, but just on a daily basis (15-20 mile rides). I hope to get into more multi-day stuff soon, which is why their cross-country skate intrigued me so. (I have some multi-day trek running experience.) I would eventually like to talk on the phone to Jack about his amazing feat and get information and insight and inspiration. When I cruise on my board, I usually do about 10 miles per hour and keep it up for a couple of hours. I don't bomb hills at my age, which may slow me down somewhat. Nothing too great, but lots of fun.
One other question about the cross-country skaters. Did they push up hills or walk the steeper hills? I'm thinking Rockies and Appalachians must have been a bItch to chug up. Anyone know???? Thanks!
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